They’re kind of directing where it’s going, but at the same time I have control over it. So if they tell me something and it doesn’t seem like something I want to do, I’ll go read about it, and then I’m like, okay, yes or no. -PLHIV
Now I’m at a point where perhaps people should be all the time. I disagree with what my doctor is saying and I’m like, ‘‘No, I asked you for this information and you’re telling me this and I really want this information.’’ That’s the way I am now, but in the beginning I just sort of handed myself over, ‘‘You people know what’s going on, I don’t’’. -PLHIV
Diversity is increasing in the HIV patient population in terms of age, race, ethnicity and gender. Moreover, PLHIV can be prevented from adhering to treatment due to changes in routine, a hectic schedule or sleeping away from home :
A more individualised treatment approach with collaboration, mutual responsibility and shared HCP patient goals is required
Concerns of inadvertent disclosure can inhibit PLHIV from taking their medication in the company of others
In some cases, its not because PLHIV forget to take their medication, but because they cannot afford the consequences of revealing their status
Many PLHIV are experts of their own condition and hold valuable knowledge. They want to be involved in their own care:
All images are for illustrative purposes only. Any person depicted is a model.
ART: antiretroviral therapy; PLHIV: people living with HIV; QoL: quality of life.