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Discussing multiple sclerosis symptoms with your patients

Discuss with your patients the symptoms they find most troubling

Although the symptoms of MS are complex and their pathophysiology is not fully understood, the burden they put on patients living with MS is clear:

Patients living with MS experience a wide range of symptoms[1][2][3]

Many MS symptoms are 'invisible'[1][2]

MS symptoms can worsen over time, significantly affecting patients and their care givers[4][5][6]

Consider asking your patients living with MS to share the full range of their symptoms, including those that are not outwardly visible to others or those which are potentially embarrassing, to gain a clearer insight into how their disease is affecting them.

Stay in touch with Janssen (for healthcare practitioners)

References

White CP, White MB, Russell CS. Invisible and visible symptoms of multiple sclerosis: which are more predictive of health distress? J Neurosci Nurs. 2008; 40(2): 85-102.
Parker LS, Topcu G, De Boos D, das Nair R. The notion of "invisibility" in people's experiences of the symptoms of multiple sclerosis: a systematic meta-synthesis. Disabil Rehabil. 2020:1-15. doi: 10.1080/09638288.2020.1741698. Epub ahead of print. PMID: 32208036.
Kister I, Bacon TE, Chamot E, et al. Natural history of multiple sclerosis symptoms. Int J MS Care. 2013; 15(3): 146-158. doi: 10.7224/1537-2073.2012-053.
Ysrraelit MC, Fiol MP, Gaitán MI, Correale J. Quality of Life Assessment in Multiple Sclerosis: Different Perception between Patients and Neurologists. Front Neurol. 2018; 8:729. doi: 10.3389/fneur.2017.00729.
Mortensen G, Rasmussen PV. The impact of quality of life on treatment preferences in multiple sclerosis patients. Patient Prefer Adherence. 2017; 11: 1789-1796. doi: 10.2147/PPA.S142373.
McKenzie T, Quig ME, Tyry T, et al. Care partners and multiple sclerosis: differential effect on men and women. Int J MS Care. 2015; 17(6): 253-260. doi: 10.7224/1537-2073.2014-083.
CP-185211 - January 2021