Conversations that delve beyond the scan and the relapses.
And begin to ask questions that really matter.
Like what gets patients out of bed in the morning?
What are their hopes and dreams?
What does next week, next month or the next five years look like?
Because when HCPs own the conversation and ask more questions
About patients’ ambitions, passions, worries even.
Then they can begin to navigate their disease management around their whole lives.
Wherever that may take them.
The unpredictable and variable nature of MS means it can affect every aspect of your patients’ lives – their work, their family and their social life. It can be difficult, but by finding out more about them and adopting a holistic approach to care you can work together to develop an individualised disease management plan.[1][2]
Besides a clinical evaluation of treatment benefits and risks, patient preferences in terms of safety, administration, lifestyle and overall quality of life should all be considered.[2][3] From a clinical perspective physical function is a key component of disease management, but patients living with MS also place a strong emphasis on emotional wellbeing.[4] While most clinicians agree on the importance of assessing quality of life there can be a lack of confidence when it comes to aligning care to patients’ personal treatment goals.[5]
Fostering positive expectations for the future may enhance a patient’s quality of life[6] – so start the conversation now.
MS is typically diagnosed in young, active adults in the prime of life – people in their 20s or 30s with the potential for decades of employment ahead of them or who could be making decisions about starting and raising families.[4]
What are your patient’s hopes for the future? Are they thinking of starting or growing their family? Maybe they are chasing a promotion or planning the trip of a lifetime? The treatment preferences of patients living with MS are influenced by multiple factors and evolve over time along with personal and professional changes in their life.[2] The optimal therapeutic approach should allow flexibility to adjust for these changing individual patient needs.[2][7]
Patients with MS can be concerned about things like the risk of infections, what might happen if they ever need surgery or vaccinations.[8][9] Discussing these and other aspects that may be important to them, such as family planning, early in the course of treatment helps them to make informed decisions about their choices.[10]
Whatever your patient’s concerns, having a good ongoing dialogue could be the first step to addressing them.[3]
Patient preferences regarding acceptable side effects, frequency and mode of administration and intensity of monitoring should all be considered when making treatment decisions and throughout the course of the disease.[2][7]
It's important that patients don’t feel pathologised by treatment and they may prefer oral treatments or other less frequent modes of administration.[2] Treatment satisfaction in terms of perceived efficacy, side-effects and convenience is one of the main determinants of health-related quality of life (HRQoL).[14] By taking practical patient preferences into account you can help to improve acceptance of and adherence to MS treatments.[7][14]
Proactive collaboration between patients and healthcare teams is vital to effective MS management.[4]
Patients living with MS want to be informed, educated and have access to multidisciplinary teams to help them deal with the complexities of their disease and find a treatment approach that best fits their everyday needs.[4][15] Maintaining a good, ongoing dialogue with their HCP throughout their disease course is important to patients with MS.[3] Now the growing number of therapies available and variety of mechanisms of action offer real opportunities to individualise treatment, whilst balancing considerations around efficacy, potential side-effects and patient preferences.[16][17]
So let’s get talking.
HCP, healthcare professional; HRQoL, health-related quality of life; MS, multiple sclerosis.